Gwen Hartley

Washington Post offers totally haunted look at one family's pain and glimpses of heaven

The Zika virus is all over the news, right now, so it isn't surprising that journalists are looking for other news stories they can connect to it.

This past week, I received several notes from readers about the following Washington Post "Inspired Life" feature. One came with the traditional trigger warning: "Have tissues ready."

The reader could have added this warning: "Prepare to read about a powerful human drama that is haunted by a religion ghost." The headline: "What this amazing mom of two girls with microcephaly has to say about Zika scare." Here is the classic feature-story overture:

Gwen Hartley’s 19-week sonogram was normal. Her baby girl, her second child, was going to complete her storybook life. She’d married her high school sweetheart, they already had a healthy son, a house and a dog.
When Claire was born, Hartley looked adoringly into her daughter’s big eyes and remembered thinking that she’d forgotten how tiny a newborn’s head was. Then the doctors whisked her baby away. Something was wrong. Something that couldn’t be fixed.

After a series of misdiagnoses, the Hartleys, of Kansas, were told Claire had microcephaly, a serious birth defect that causes babies to have extremely small heads and brains, and, in her case, made it unlikely she would live beyond a year. Almost five years later, Claire was defying the odds and, although she couldn’t speak or walk or even sit upright, she was a happy and vibrant child. The Hartleys felt ready to get pregnant again.


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